Receiving a dementia diagnosis, whether for yourself or a loved one, can be overwhelming, emotional, and full of uncertainty. It’s natural to feel worried or unsure about what comes next. However, while the diagnosis is life-changing, it’s important to remember that there are clear steps you can take to plan ahead, get the right support, and focus on maintaining quality of life for as long as possible.
Here’s a practical guide to help you navigate what to do after a dementia diagnosis.
1. Take Time to Process the News
Hearing the words ‘you have dementia’ or ‘your loved one has dementia’ is never easy. Give yourself and your family space to absorb the news. It’s normal to experience a range of emotions, from shock and sadness to fear or even relief at having answers. Be kind to yourself and know that it’s okay to ask for emotional support from trusted friends, family, or a counsellor.
2. Learn About the Diagnosis
Ask the doctor or specialist for details about the type and stage of dementia, what symptoms to expect, and how it may progress. Understanding the condition helps you plan more effectively and reduces fear of the unknown. If you want to educate yourself at your own pace, ask your doctor for written materials and about reputable websites or referrals to local dementia organisations. They’ll be more than happy to guide you in the right direction.
3. Involve Family and Loved Ones Early
Share the diagnosis with close family or trusted friends and talk openly about the next steps. Discussing care needs, future plans, and how others can help sets the foundation for a supportive network. Remember, you don’t have to go through this alone. Involving others can lighten the emotional and practical load.
4. Review Legal and Financial Plans
It’s important to address legal and financial matters early while the person with dementia can still express their wishes. Meet with a lawyer to arrange or update documents like a power of attorney, healthcare proxy, will, and advance care directives. During this time, you can discuss financial planning, including managing assets, covering future care costs, and accessing benefits or entitlements.
5. Explore Care and Support Options
With your doctor’s advice, you can start exploring local support services, including memory clinics, occupational therapists, home care services, and dementia support groups. You or your loved one can do this while still at home. However, as the condition progresses, care needs will increase, and you may need professional assistance. Many families eventually consider the option of moving to a home that offers specialized dementia care, like this Fareham care home. These care homes provide 24/7 support, adapted environments, stimulating activities, and social engagement tailored to people living with dementia, helping both the person affected and their family enjoy a better quality of life.
6. Focus on Daily Well-being
Even after a dementia diagnosis, life can still hold joy, connection, and meaning. The key is to focus on creating simple routines, engaging in activities the person enjoys, staying physically active, and maintaining social connections. Small, familiar pleasures, such as listening to music, doing nature walks, creating art, or spending time with loved ones, can provide comfort and boost emotional well-being.
Conclusion
A dementia diagnosis marks the beginning of a new and challenging journey, but it’s not one that you have to face alone. By taking practical steps early, building a support network, planning ahead, and staying focused on what brings meaning and connection, you can navigate the road ahead with strength and compassion.
